HAPPY 8th BIRTHDAY, DEEDEE!

The Lion King: Remember Who You Are

This year Deedee's birthday theme is The Lion King. She loved this movie with passion, and because of it she understood very well what is the Circle of Life. She understood about life and death. And she understood the importance of being true to yourself, and that as life went on after death everyone that seems to go away lives on within us, within our hearts.

Visiting Deedee's Star

We celebrated going to Give Kids the World, checking out Deedee's star. Located in the Potted Galaxy, 563134. We will forever be grateful to the Gaynor Family, who put up a star for Deedee in their visit on 3-3-2013. In the notes she is mentioned as Sofia's sister, who passed away and did not make it to her wish trip. 

It is impressive how the galaxies have grown... Our first time there the tower was new, and there were only 3 galaxies. It is all bitter-sweet... Beautiful, but bitter-sweet.

And where can you find Deedee's star? Here, of course... 

"Deedee the Diva 4 Ever"

The guardian of the castle.

Inside the magical meadow.

Back home, we had a surprise for Deedee. Of course we had cake!

Kali was happy to assist in her sister's place...

And she blew the candle in Deedee's name.

Deedee's godfather was also here with us.

And here we are, our little family.

May there always be an angel watching over all of us.

May that angel always be you.

Our Diva, our Sunshine, our inspiration....

Happy 8th birthday, big girl!

May all your wishes come true.

May your days be filled with happiness and joy.

May you live in blessings and walk in beauty always.

I love you.

We love you.

Always remember...

BABY EIRIAM NEEDS YOUR HELP

Hello everyone! Please help with this fundraiser. This baby girl is Eiriam. Right now she is at the Pediatric Hospital in SJ, Puerto Rico. She was diagnosed with Spinal Muscular Atrophy Type 1, the same illness that Deedee had.

Her mom is going through all the things that we went through when Deedee was there... Just like we did with Deedee, they are trying to give their baby a chance at life. They want to take baby Eiriam to the US so SMA doctors can treat her. There is not much help around them. Please spread the word and help with what you can: Prayers are always welcome, donations are also welcome if you are moved to do so.

Baby Eiriam was born on July 2, 2014. She is intubated, She's been fed via naso-gastric tube. Lungs have been collapsing, and she needs expert care right now. Her family has communicated with Dr.Bach, but none of her doctors back in Puerto Rico feel the need to help her come to the US mainland. They feel she has a terminal illness and there is not much to do but take her home and give her love.

As the whole SMA community knows, this is not true. Yes, there is a diagnostic but there are choices for care and means to provide plenty of quality of life. Kids with SMA with a terminal prognosis have been known to live for more than 5 years, many leaving doctors and other professionals baffled.

Doctors told us Deedee would not live  beyond 1 year. She was with us for 5 years and 2 months, and she lived an outstanding life filled with miracles, love and quality of life.

Please help baby Eiriam have a true chance to live.

BABY EIRIAM's GOFUNDME

PLEASE CLICK HERE!

In Facebook, please contact her mom Mairie Piikeetee Maldonado or her grandmother Magui Perez for any information that you may want to share, or just for the support that they definitively need.

Thank you in advance for your help!