In the middle of July...

 Good news:

1. Deedee's 1st week at camp was a success! Our diva has a busy schedule, but apparently she loves it.
2. Her favorite teacher is back! And so, she is a very happy camper. Eyes smiling every morning! 
3. We welcome a new nurse to our team, Nurse Maggie, a fellow boricua. It has been thrilling to speak in our main language for a change (our primary language is Spanish).
4. Preparations are going on for our vacation getaway. We are all excited about this award, a prize won from the Joseph Lillo SMA Foundation for Children giveaway for SMA families on the Tri-State area. Thank you guys!
5. Deirdre will soon have her official hippotherapy evaluation thanks to the contribution of some close friends.

Disappointing news:

1. Therapies clashing with Deedee's class schedule... and so far no SLP. Therapies for Summer have been cancelled from normal hours. It will be difficult to place them at what DoE calls "normal 8:00am to 3:00pm school hours" as Deirdre has a full morning and afternoon schedule. DoE fails to acknowledge her need for respiratory therapy/treatment every morning, which takes away 2 hour each morning... More days go into the chest of days owed by DoE for SLP, PT and OT. 
2. Denial for hippotherapy from insurance, basically claiming lack of coverage for that therapy and because it is in an out of network facility. It has been frustrating having to battle for things Deirdre needs now and that are not whims.
3. The Permobile Powered Wheelchair is still not submitted to insurance as we are waiting for a demo of fiber-optic control to decide if it would be better than a mini joystick... The wait has been long and by now beyond ridiculous. We started all this process in November 2011... and still nothing... Very bad customer service from our provider... we don't even get updates unless we push for them.

 In process:

1. Our diva's 5th Birthday Celebration! Yes, Deirdre will turn 5 years old on August 17th,  and we declare the weekend that follows her birthday a Divalicious Weekend Birthday Bash!
2. Deirdre's new Bantam Stander was approved... maybe will arrive by her birthday...
3. Make a Wish will make Deedee's wish come true just around Fall's end. Stay tuned for more details!