After a quest of more than 5 months, the new stander for Deirdre arrived! We had sent it out to insurance in April, but the paperwork got lost at both ends (insurance & DME). Nevertheless, persistence finally paid off... Deirdre has a BANTAM stander that hopefully will help her achieve many physical goals.
Right now the main concern is that her knees began contracting thanks to going for so long without a stander. It is very dissapointing when details like this goes unnoticed by the service providers... their negligence and lack of interest has this consequences. Now we have to work with Deirdre to see if it is possible to go back to where she was... no contractions whatsoever, and the ability to stand in her stander for up to 6 hours without problems.
Right now we go back to begin with endurance, tolerance, use of knee brace AFO (Ankle foot orthosis), and use of her TLSO (Thoracolumbosacral orthosis: This is one of two main types of braces used to correct the lateral (sideways) curve of the spine in scoliosis. Right now Deirdre has no curvature in her spine, and we want to keep it that way. The main problem is that her TLSO is hard and very tight... We need to seek further advice about this as it is obvious that it hinders her breathing.
We have researched myofascial release therapy, a specialty PT that may help with the knee contractures, but as usual insurance becomes a big problem... We still have to see if we can find a PT for this specific purpose and validate its use for Deirdre.
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