Tuesday, August 13, 2013

August: SMA Awareness Month

August is SMA Awareness Month. Each year, families from all around the globe gather at sunset and light a candle in honor of SMA Angels and SMA Warriors. The candles glow with all the hope that we focus on them, hope for treatment and hope for a cure.

We lit a candle in honor of our SMA Angel, our diva Deirdre. We pray that a cure is found soon so many other families do not have to go through loosing their precious kids. In this day and age, we know that a cure is out there and treatment should be available for everyone (not just SMA kids, but kids with so many conditions around the world). We pray that the hearts of the people in power stop being so hardened, so everyone has a chance to live.

Deedee, you are not forgotten. Your memory inspire many projects that little by little will take shape... and will help others the same way that so many helped you. Keep on being with us in spirit, guiding us. Keep on touching many lives.

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